 |
 |
 |
Helpful Resources.
There are many excellent resources for parents, family, friends and caregivers of children and teens with cancer. Some of the most comprehensive resources are listed below. We hope this information will help newly diagnosed families, children on active treatment and survivors, as well as families facing or dealing with the death of their child.
• www.acor.org/ped-onc/
One stop center for parents for children with cancer...by parents of children with cancer.
One stop center for parents for children with cancer...by parents of children with cancer.
• www.oncolink.upenn.edu/
Comprehensive site, with searchable databases, contains up to date disease specific information and a searchable database.
Comprehensive site, with searchable databases, contains up to date disease specific information and a searchable database.
• www.cancernet.nci.nih.gov
Your gateway to the most recent and accurate cancer information from the National Cancer Institute.
Your gateway to the most recent and accurate cancer information from the National Cancer Institute.
• www.griefwarehouse.org
Designed for parents who are dealing with the death of their child
Designed for parents who are dealing with the death of their child
• www.onevoiceusa.org
National family support/advocacy organization.
National family support/advocacy organization.
• www.jacobsheart.org
Dedicated to improving the quality of life for children with cancer and easing the burden faced by their families.
• www.candlelighters.org
The only national organization representing parents and children through support, advocacy, comprehensive information on clinical trials, publications available, affliated with local support groups across the country.
• www.curesearch.org/
Supports research on childhood cancer treatment and research institutions, affliated with Children's Oncology Group (COG)
Supports research on childhood cancer treatment and research institutions, affliated with Children's Oncology Group (COG)
• www.fcco.org
Devoted to education, support, and advocacy for families living with childhood cancer and being treated at Toronto's Hospital for Sick Children.
• www.cancerindex.org/ccw/
A guide to internet resources for childhood cancer.
A guide to internet resources for childhood cancer.
• www2.stjude.org
Finding cures for children with catastrophic illnesses through research and treatment.
Finding cures for children with catastrophic illnesses through research and treatment.
• www.jlsfoundation.org
Useful guide for children with leukemia.
Useful guide for children with leukemia.
• www.acor.org
Excellent books by parent of a childhood cancer survivor on childhood leukemia, solid tumors, survivorship, clinical trial these books are a must for families, friends and caregivers.
Excellent books by parent of a childhood cancer survivor on childhood leukemia, solid tumors, survivorship, clinical trial these books are a must for families, friends and caregivers.
• www.compassionatefriends.org
Self-help support organization which offers friendship and support to families who are grieving the death of a child.
Self-help support organization which offers friendship and support to families who are grieving the death of a child.
• DaybyDay
A list for parents of children who have died from cancer, and for parents whose children's treatment options have been exhausted. Send a request to join to Gigi at gigi@lgcy.com
A list for parents of children who have died from cancer, and for parents whose children's treatment options have been exhausted. Send a request to join to Gigi at gigi@lgcy.com
• www.jessiefoundation.org
Benefits pediatric cancer research, and support for programs that enhance the difficult lives of kids and their families coping with cancer.
Benefits pediatric cancer research, and support for programs that enhance the difficult lives of kids and their families coping with cancer.
• www.leukemia.org
Mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and to improve the quality of life of patients and their families.
Mission is to cure leukemia, lymphoma, Hodgkin's disease and myeloma, and to improve the quality of life of patients and their families.